Heart failure | Manawa ngoikore

Key points about heart failure

  • Heart failure (manawa ngoikore), or congestive heart failure, is when your heart can’t pump blood properly around your body.
  • It means your heart’s pumping action is getting weaker, not that it's about to stop. 
  • Symptoms can include shortness of breath, swelling of your ankles, legs or tummy, tiredness and being less able to exercise. 
  • Heart failure can't be cured, but there are treatments to help manage it.
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Heart failure (manawa ngoikore) is when your heart can’t pump blood properly around your body. It is also known as congestive heart failure.

Key points about heart failure

  • Heart failure means your heart’s pumping action is getting weaker. It doesn’t mean your heart is about to stop. 
  • There are many conditions that can cause heart failure.
  • Symptoms develop slowly and can vary. They include shortness of breath, swelling of your ankles, legs or tummy, tiredness and being less able to exercise. Your sleep may be disturbed.
  • Symptoms can get worse and become particularly severe during a flare-up (exacerbation).
  • Heart failure can't be cured, but there are treatments to help manage it.
  • There are many things that you, your family/whānau and your healthcare team can do to help you feel better and stay well for as long as possible.

See your healthcare provider or go to the nearest emergency department if you or someone you care for has heart failure and experiences the following:

  • sudden chest pain that lasts more than a few minutes
  • sweating and weakness
  • more shortness of breath than usual despite following action plan steps
  • feeling very unwell
  • dizziness, fainting or blackouts
  • fever (a high temperature)
  • increased swelling of ankles or abdomen (tummy)
  • coughing for no reason.

Your heart has 4 chambers with muscular walls. The upper chamber on each side is called an atrium (left and right atrium). The lower chambers are ventricles (left and right ventricle).

Blood that is low in oxygen returns from your body and is collected in the right atrium and then shunted to the right ventricle. The right ventricle then pumps this blood to your lungs to pick up oxygen. Oxygen-rich blood from your lungs returns to your left atrium and passes into the left ventricle. The left ventricle then does the most work, pumping oxygen-rich blood to your entire body.

Every minute your heart pumps 4–6 litres of blood around your body. When you are active, this increases a lot.

Heart failure occurs when your heart can’t pump blood properly around your body. It doesn’t mean your heart is about to stop – it just means your heart’s pumping action is getting weaker.

Watch this video about what goes wrong in heart failure.



(Heart failure matters, UK, 2012)

Heart failure can affect one side or both sides of your heart. The condition gets worse over time as your heart's pumping action becomes weaker. When your heart stops pumping blood properly, fluid starts to build up in different parts of your body, causing symptoms such as swelling of your feet, shortness of breath and tiredness. The term ‘congestive’ means different parts of your body collect too much fluid due to the poor circulation of blood.

There are many conditions that can cause heart failure, most of them conditions that affect your heart, including:

Coronary heart disease is the most common cause of heart failure. Coronary heart disease describes the blockage of the blood vessels that supply your heart. Coronary heart disease includes heart attack (where the blockage occurs suddenly) or angina (chest pain due to reduced blood flow to your heart muscles). Coronary heart disease can cause scarring of your heart muscles and weaken your heart’s pumping action.

High blood pressure can put extra strain on your heart, as your heart needs to pump harder. Over time, your heart muscles can be damaged and your heart’s pumping action can get weaker.

Cardiomyopathy is a disease of the heart muscle itself. It commonly refers to an abnormally large, baggy heart that cannot pump well enough. It can be caused by some viral infections or drinking too much alcohol.

Myocarditis is the inflammation or infection of the heart muscle. This is commonly caused by a virus (including COVID-19) and may lead to heart failure, especially of the left side of your heart.

Non-heart conditions include:

Sometimes, the cause can't be found.

You are at higher risk of developing heart failure if you:

Symptoms of heart failure develop slowly and can vary from person to person. They include:

  • shortness of breath with exercise or when lying flat – shortness of breath when lying down flat is caused by a build-up of fluid in your lungs
  • swelling (also called oedema) of your feet, legs or tummy
  • reduced exercise tolerance – climbing stairs or walking may leave you tired, weak and short of breath
  • rapid heartbeat
  • tiredness or fatigue
  • weight gain due to fluid build-up
  • cough that is worse when lying down, and you may produce coloured sputum
  • loss of appetite or nausea
  • dizziness
  • a need to pee during the night
  • confusion – this may be the only sign in older adults.

Your symptoms can become worse and be particularly severe during a flare-up or exacerbation. Read below about heart failure flare-up and how to manage it.

See you healthcare provider or go to the nearest emergency department if you or someone you care for has heart failure and experiences the following:

  • sudden chest pain that lasts more than a few minutes
  • sweating and weakness
  • more shortness of breath than usual despite following action plan steps
  • feeling very unwell
  • dizziness, fainting or blackouts
  • fever (high temperature)
  • increased swelling of your ankles or abdomen (tummy)
  • coughing for no reason.

Although treatment can help to control heart failure symptoms, heart failure can get worse over time so that treatment isn't as effective and your daily life is affected.  

What are the symptoms of advanced heart failure?

Symptoms of advanced heart failure may include that you: 

  • are very short of breath despite not exerting yourself or even at rest, while you are already on quite a few medicines
  • need more help with day-to-day chores, such as getting dressed, preparing meals or personal care
  • lose your appetite 
  • feel weak, with no energy and feel very tired
  • have repeated hospital admissions due to heart failure or needed to see your doctor multiple times
  • are losing weight 
  • stay in bed most of the time and move around less. 

What happens if I have advanced heart failure? 

If you have advanced heart failure, it's likely that you won't get any better. Your doctor will suggest palliative care treatment to make sure you are living in comfort and to improve your quality of life.

Palliative care aims to manage any distressing symptoms you may have and enables you and your whānau to make decisions about how you wish to spend the remainder of your life. Your doctor is likely to refer you to a palliative care team to talk about some of the choices you may want. Read more about palliative care

It is a good idea to plan your future health care and end-of-life care to help prepare you and your whānau for what the future might hold. This is especially helpful if you can no longer speak for yourself, eg, if you get very sick. It also helps your healthcare team know what health care you want or don't want. This is known as advance care planning

If you have advanced heart failure and are towards the end of your life, your doctor may stop your heart failure medicines as they are no longer effective in managing your symptoms.

Instead, your doctor may prescribe medicines to relieve your symptoms, such as:

  • pain relief medicines to control your pain
  • morphine or benzodiazepines to control your breathlessness
  • antiemetics if you have nausea or vomiting
  • laxatives if you have constipation. 

Read more about common symptoms in palliative care

What support is available with advanced heart failure? 

The Heart Foundation NZ(external link) provides resources and support for those living with a heart condition. You can also find a local support group in your area here(external link). Contact them using their online form(external link) or visit their website here(external link).

Extra support is also available if you need it. Talk to your healthcare team to find out how you can access this.

It includes:

  • equipment to help with your daily chores, such as chair raisers and shower stools
  • mobility parking and taxi vouchers to help you get around your community
  • carer support to help support your carer who is looking after you
  • counselling or mental health support
  • needs assessment if you want to move into a rest home or other residential care. 

A flare-up is when your heart failure symptoms suddenly get worse. This might include increased shortness of breath, increased swelling of your ankles or tummy or worsening cough. A flare-up might be triggered by an infection, but there may be no apparent reason. A flare-up is also known as an exacerbation.

Each flare-up can make your heart weaker. It's a common cause of admission to hospital. It's important to be prepared and know how to recognise the symptoms of a flare-up and what to do when they happen.  

What are the causes of a flare-up?

A heart failure flare-up means you are retaining fluids in your body, such as in your lungs, ankles or tummy. Extra fluids can be due to a number of causes, including:

  • not taking your diuretics (water tablets) or other heart failure medicines regularly
  • recent changes in your heart failure medicines
  • an infection
  • high blood pressure
  • a heart attack 
  • a new heart rhythm problem (arrhythmia)
  • too much alcohol 
  • too much fluid and salt intake. 

Any other issue that makes your heart work harder can cause a flare-up. 

What are the signs of a flare-up?

Signs you may have a flare-up include:

  • worsening shortness of breath
  • worsening swelling of your ankles, legs and tummy
  • rapid weight gain 
  • worsening cough 
  • confusion
  • feeling very unwell generally. 

What should I do if I have a flare-up?

The best way to manage a heart failure flare-up is to have a heart failure action plan. A heart failure action plan(external link) is a written document that provides you with instructions and information on how to manage your heart failure on a daily basis, and how to recognise and cope with worsening symptoms. You can develop your heart failure action plan with your healthcare provider and fit the plan to suit how severe your heart failure is and your wishes. When you have a flare-up, follow the steps on your action plan as discussed with your healthcare provider. At each visit, you and your healthcare provider can review your plan and make adjustments as needed. 

However, having an action plan doesn't replace your doctor. It means you can respond quickly and recognise symptoms that require you to seek medical attention. You should still see your doctor as soon as possible after a flare-up. Tell your doctor or nurse if your symptoms don't improve after following the steps on your action plan. 

You may need to go to hospital for severe flare-ups. 

See your doctor or go to the nearest emergency department if you or someone you care for has heart failure and experiences the following:

  • sudden chest pain that lasts more than a few minutes
  • sweating and weakness
  • more shortness of breath than usual despite following the action plan steps
  • feel very unwell
  • dizziness, fainting or blackouts
  • fever (high temperature)
  • increased swelling of your ankles or tummy.

How is a flare-up managed in hospital?

In hospital, your doctor will try to find out the cause of your flare-up by doing blood tests, an electrocardiogram (ECG), a chest x-ray or an echocardiogram (echo)

Treatment of a flare-up depends on the cause. It may include:

  • a higher dose of your diuretics (water pills) by mouth or you may be given the medicine through a vein instead
  • oxygen if your oxygen level is low 
  • nebulised bronchodilators to help open your airways
  • antibiotics if you have an infection 
  • pain relief medicines if you have any pain
  • treatment of heart attack such as aspirin if you have a heart attack. 

Your healthcare team will let you know what is causing your flare-up and talk to you about the best treatment option for you. 

How can I reduce the risk of a flare-up?

There are things you can to do reduce the risk of a flare-up, including:

  • getting support to quit smoking
  • getting vaccinated against the flu and pneumococcal disease
  • taking your heart failure medicines daily as prescribed by your doctor
  • monitoring symptoms such as your breathing and swelling and weighing yourself every day
  • joining a cardiac rehabilitation programme
  • attending your follow-up appointments regularly. 

Read below about self-care for heart failure. 

Your doctor or GP will ask you questions about your symptoms and your past medical history. They will also examine you, including checking your pulse and blood pressure and listening to your heart.

Some tests can be done to help diagnose heart failure and its possible causes.

  • Blood tests such as testing for electrolytes, kidney function test, full blood count, thyroid function test or a brain natriuretic peptide (BNP) test (a high BNP level suggests heart failure is likely).
  • An electrocardiogram (ECG) to check the electrical activity of your heart and for a heart rhythm that can cause heart failure.
  • An echocardiogram (echo) – an echo is an ultrasound scan of your heart and shows how each part of your heart is functioning, and how much blood is being pumped with each beat.
  • A chest x-ray – this can find out if there is fluid in your lungs and other lung conditions that can cause the same symptoms as heart failure.
  • Breathing tests such as spirometry – a spirometry can find out if your breathlessness is caused by another lung condition.

Heart failure can’t be cured, but there are treatments available to manage your condition.

Treatments of heart failure include:

  • self-care
  • medicines
  • devices for heart failure
  • surgery, which may include a transplant procedure.

Self-care

You have an important role to play in your heart health. There are things you can do to monitor and improve your symptoms of heart failure, including eating well, stopping smoking, staying active and losing weight if you need to. Read below about how to care for yourself with heart failure.

Medicines

Other than self-care and lifestyle changes, medicines are prescribed to control heart failure. These medicines work best if taken regularly. If you get side effects, talk to your doctor before stopping. Sometimes finetuning is needed to find the right dose and combination for you. Many of the pills you need to take to strengthen your heart start with a small dose and are built up gradually, depending on whether you have any side effects. 

Medicines used to control heart failure

Your doctor or nurse will let you know which medicines are suitable for you.

Devices for heart failure

Devices such as pacemakers, cardiac resynchronisation therapy (CRT) and implantable cardioverter defibrillators (ICDs) help manage heart failure in some people. These devices are not suitable for everyone. Your healthcare team will let you know whether these are suitable for you.

Surgery

For some people with heart failure, an operation may help. The type depends on what is causing your heart failure. Your healthcare team will let you know whether surgery may help in your situation.

Coronary bypass surgery may be helpful if you have coronary artery disease as a cause of your heart failure. If you have problems with your heart valves, heart valve surgery may be suitable for you.

Treatment for advanced heart failure

Although treatment can help to control symptoms, heart failure can get worse over time, becoming more severe and getting to a point where treatment isn't that effective any more. If that occurs, your daily life can start to be affected. Read below about advanced heart failure.

Managing heart failure well needs the input of your GP, who knows about your other health issues that may affect your heart failure. Other healthcare team members that may be involved in your care include a heart specialist, heart failure nurse, dietitian and pharmacist. Involve your family/whānau in your decision making.

There are also things you can do yourself to monitor and improve your symptoms. On this section you can find out about them

Have a heart failure action plan

A heart failure action plan provides you with instructions and information on how to manage your heart failure on a daily basis and also how to recognise and cope with worsening symptoms, such as flare-ups (exacerbations).

You can develop your heart failure action plan with your healthcare provider and fit the plan to suit how severe your heart failure is and your wishes. At each visit with your healthcare provider, you can review the plan and make adjustments as needed. 

Here's an example of a heart failure action plan(external link) by the Heart Foundation NZ. 

(external link)

Weigh yourself each day

Your doctor may recommend you do this to check whether you have any extra fluids. If you put on more than 2kg over a few days, your body is retaining fluid, not fat. Your doctor will help you work out your target weight – this is your weight with no extra fluid, and is the weight at which your body and heart work best. 

Weigh yourself every morning each day at the same time (after you have been to the toilet, before you eat or drink anything and before you get dressed). Use digital scales, and use these on a firm surface, eg, lino or tiles. Then record your weight on your heart failure action plan and remember to bring it with you to every appointment with your healthcare team.

Other than weighing yourself, you also need to check for swelling. Check whether your rings, waistband, socks or shoes feel tighter. You can also press firmly into the skin of your ankle, shin and knee with your finger. If your finger makes a dent that doesn’t quickly fill, you have swelling. 

You should also monitor any changes in your breathing. If you are more short of breath than usual or have more swelling, you are likely to retain more fluid.

Follow the steps in your action plan as discussed with your healthcare team or contact your doctor if you are concerned about any aspect of your health. 

Healthy eating 

Choosing healthier foods, such as whole grains, smaller portions, healthy fats, low-salt and less processed foods, can help you manage your heart failure or other health issues you may have. Avoiding or limiting salt is particularly important in heart failure as salt makes you retain fluid and makes it difficult to get rid of fluid from your body. Read more about healthy eating.

Limit fluids 

You should avoid having too much fluid, but you don’t need to restrict your fluids too much unless your doctor advises you to do so. Drink about the same amount each day. Remember other food may contain fluids, such as yogurts, soups, teas, ice cream or smoothies. If you are not sure how much fluid you need to have, contact your doctor.

Stop smoking

Smoking makes you even more breathless, continues to damage your heart and dramatically increases your chances of a heart attack. Ask your doctor or nurse to get support to help you quit smoking. 

Limit alcohol 

People with weak hearts don’t cope well with alcohol, even in moderate amounts. Drink only small amounts and don't binge drink. If your heart failure is caused by too much alcohol, you should not drink at all.

Look after your mental health 

You also need to look after your mental health. You might have lots of different feelings while coping with your symptoms, such as anxiety, stress or depression

Try to avoid stressful situations. If you get stressed, use relaxation techniques such as taking 6 slow, deep breaths. Doing something where you feel useful and gain a sense of achievement can help you regain balance in your life.

It also helps to have plenty of rest and get a good night's sleep, as this allows your body and mind to restore. Talking to family/whānau members can also help. If you need more support, ask your healthcare team for a referral to a psychologist or counsellor. 

Stay active 

Start exercising gently by doing a little, and slowly increase your activity as you manage more. Try walking gently around the house or down the road first. Ask your doctor or nurse about suitable exercises for you or about any exercise programmes available in your area.

Have a healthy body weight

Losing weight if you are overweight helps takes the strain off your heart and can help you feel better. If you are underweight or have a poor appetite, having foods that are higher in calories and protein, or high-energy drinks, can help boost your energy. Ask your doctor, nurse or dietitian for advice on how to reach a healthy weight.

Get vaccinated

Vaccination against the flu and pneumococcal disease is recommended as these infections can worsen your symptoms. Ask your healthcare team about getting these vaccinations, and the COVID-19 one.

Attend regular follow-ups

It is important to attend your follow-up appointments regularly. This allows your doctor or nurse to monitor your health and see how your condition is progressing, as well as review your medicines and answer any questions you may have. Bring your heart failure action plan with you so that your healthcare team can monitor and better understand what is happening for you.

Join a cardiac rehabilitation programme 

You may be advised to attend a cardiac rehabilitation group at your local hospital. These are excellent for learning more about ways to strengthen your heart again and supporting you to get more active. Some local gym's also have exercise classes for people with heart failure.

Read more about cardiac rehabilitation.

The Heart Foundation NZ(external link) provides resources and support for those living with a heart condition. You can also find a local support group in your area here.(external link) Contact them using their online form(external link) or visit their website here.(external link)

They provide a range of resources including:

The following links provide further information about heart failure. Be aware that websites from other countries may have information that differs from New Zealand recommendations.   

Heart failure(external link) Heart Foundation, NZ
Your guide to heart failure(external link) British Heart Foundation, UK
Heart failure(external link) NHS, UK
Congestive heart failure(external link) Patient Info, UK
Staying well with heart failure(external link) Heart Foundation, NZ
Heart failure – daily checks record(external link) Heart Foundation, NZ
Advanced heart failure(external link) HealthInfo Canterbury, NZ
My heart failure action plan(external link) Heart Foundation, NZ, 2016
Heart failure – what you need to know(external link) NPS MedicineWise and Heart Foundation, Australia
Heart failure – more than just your heart(external link) NPS MedicineWise and Heart Foundation, Australia

These narrated animations (from Heart Failure Matters) explain how a healthy heart works, what happens during heart failure and how various treatments work to improve your health.

How the normal heart works

This animation shows how a normal heart works, pumping blood that provides oxygen and nourishment to all the parts of the body while carrying waste products mainly to the lungs and kidneys.

What goes wrong in heart failure

This animation shows what happens to your heart when you have heart failure. Your heart has difficulty to pump the blood around your body, often because it has been damaged by a medical condition.

How the heart & body compensate in heart failure

This animation shows how the heart and body adapt to heart failure, by trying to keep up with the amount of blood your heart needs. This is known as compensation.

How heart failure causes fluid accumulation

This animation shows how heart failure can lead to fluid accumulation in the body, affecting appetite and weight gain and leading to swollen legs and ankles.

How a heart attack can cause heart failure

Heart attacks are the most common cause of heart failure. If you have a heart attack, one of the arteries supplying your heart muscle itself has become completely blocked, cutting off the blood supply, and blocking the supply of oxygen and nourishment to that part of your heart muscle, causing it to die.

How abnormal heart valves can cause heart failure

This animation shows that if your heart valves don't work properly, your heart has to work harder to keep enough blood moving in the correct direction. This additional workload can become too much for your heart and heart failure develops.

How vasodilators work in heart failure

This animation shows how ACE (angiotensin converting enzyme) inhibitors can help you by causing your blood vessels to relax and thus lower your blood pressure. This means your heart doesn't have to work so hard to squeeze your blood around your body.

How diuretics work in heart failure

This animation shows how diuretics help your body to get rid of excess fluids (fluid accumulation is a common symptom of heart failure). This makes it easier for your heart because there is less fluid to pump around your body.

How medical devices work in heart failure

This animation shows how a number of advanced medical devices can be used to help patients that suffer from heart failure. These devices support your heart by using painless electrical signals to keep it beating regularly and/or improve function. They may not only improve symptoms but can also contribute to improve long-term survival.


(Heart Failure Matters, 2012)

Brochures

Staying well with heart failure(external link) Heart Foundation, NZ, 2019
Heart failure – daily checks record(external link) Heart Foundation, NZ, 2019
Heart failure medicines(external link) SafeRx, Waitematā DHB, NZ, 2016. Available in the following languages: English(external link)Chinese(external link)Korean(external link)Samoan(external link)
Why should I have a regular heart check?(external link) Heart Foundation, Department of Corrections, Ministry of Health, NZ, 2013
You and your ICD(external link) Heart Foundation, NZ
My heart failure action plan(external link) Heart Foundation, NZ

Apps

Fluid control app

  1. Heart failure(external link) Auckland Regional HealthPathways, NZ, 2021
  2. Managing exacerbations of heart failure(external link) Auckland Regional HealthPathways, NZ, 2021
  3. Advanced or end-stage heart failure(external link) Auckland Regional HealthPathways, NZ, 2021
  4. Heart failure diagnosis and investigation(external link) Patient Info, UK
  5. Heart failure(external link) Auckland Regional HealthPathways, NZ, 2021
  6. Managing exacerbations of heart failure(external link) Auckland Regional HealthPathways, NZ, 2021
  7. Advanced or end-stage heart failure(external link) Auckland Regional HealthPathways, NZ, 2021
  8. Acute exacerbation of congestive heart failure(external link) The BMJ, UK, 2020

Brochures

staying well with heart failure

Staying well with heart failure

Heart Foundation, NZ, 2019

heart failure daily checks record

Heart failure – daily checks record

Heart Foundation, NZ, 2019

my heart failure action plan poster heart foundation nz

My heart failure action plan

Heart Foundation, NZ

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Credits: Healthify editorial team. Healthify is brought to you by Health Navigator Charitable Trust.

Reviewed by: Dr Bryan Frost, FRNZCGP, Morrinsville

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