Here are some things to know when you're taking Parkinson's medicines. Other things may be important as well, so ask your healthcare provider what you should know about.
Timing is important
It is important to take your Parkinson’s medicines on time, every time. Not taking your medicines at the right time can lead to your symptoms becoming worse, and it can take a while for this to be put right again.
For best results, take medicines at the same time each day. If you are going to be changing your routine, eg, when going on holiday or into hospital, talk to your doctor or pharmacist so you can plan your medicine schedule beforehand.
Keep a medicine and symptoms diary
Keeping a diary can help you to monitor your condition and keep track of your medicines. A diary can be a useful way of letting your doctor know what problems you’re experiencing, any changes in your condition from day-to-day or over a period of time, and how well your medicine is controlling your symptoms. It can also help remind you of things you want to discuss during your appointment that you may otherwise forget. You can also use it to record any embarrassing issues that you want help with but find difficult to ask about. Here is some advice on the type of information you might want to keep track of if you have Parkinson's yourself(external link), or if you are caring for somebody else(external link) with Parkinson's.
Swallowing difficulty can occur at any stage of Parkinson's. This can be a problem when taking your medicines. Tell your doctor or pharmacist if you have problems swallowing your medicines. They may recommend you see a speech language therapist.
Some medicines should not be broken or crushed and your doctor may switch you to another type of medicine if this is needed. Ask your pharmacist for advice. Read more about difficulty swallowing medicines.
Medicines to avoid
Some medicines can bring on Parkinson’s-like symptoms or react with Parkinson’s medicines and should be avoided unless they’re recommended by a specialist. That's why it is always important to let your doctor, nurse or pharmacist know about all the medicines you are taking before starting any new ones. This includes over the counter medicines (eg, antihistamines, cold and cough medicines), herbal supplements and rongoā Māori.
Side effects – talk to your doctor or pharmacist
Like any medicines, Parkinson's medicines can give you side effects. If you get side effects from your Parkinson's medicines, tell your doctor or pharmacist. Common side effects include nausea (feeling sick), light-headedness, leg swelling and sleep problems. Also let them know if you think your medicines are causing confusion, hallucinations or involuntary movements. Some people have an unusual desire to gamble or engage in other obsessive behaviours. Tell your doctor if you experience any side effects, they may adjust the amount of medicine you take or you may be given another type. It is important that you don't stop taking your Parkinson’s medicines until you are advised to do so.