|iNSider||By University of Michigan|
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What does the tool do?
This online tool is an interactive way to track your nephrotic syndrome journey from first symptoms and diagnosis to treatment. Presented as a map, with a bicycle showing you where you are in the journey, you can plot your journey. On the map, tree grove icons have a specific name and clicking on it gives more information relating to that topic such as biopsy, treatment, etc. Guide post icons offer basic information about that stage of the journey such as first symptoms, diagnosis, etc.
The tool also allows you to record questions for your health care team, record your current treatments, invite a health care provider to participate in Insider and view readings suggested by your provider.
For a more information see the NephCure website(external link) or for a more detailed review, see Reviews.
✔ Input from renal specialists, patients and parents of patients.
✘ No mobile app available (web only), and it is not optimised for mobile browser viewing either.
Privacy and security
Date of review: March 2019
Platform reviewed: Website (online tool)
- Beanlands H, Maione M, Poulton C, et al. Learning to live with nephrotic syndrome: experiences of adult patients and parents of children with nephrotic syndrome(external link). Nephrol Dial Transplant. 2017 Jan 1;32(suppl_1):i98-i105.
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