Hereditary angioedema (HAE) support

Hereditary angioedema (HAE) support

  • Support services and information for people affected by hereditary angioedema (HAE) and their family/whānau.
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HAE Australasia(external link)
Email [email protected]. Dedicated to serving persons with hereditary angioedema, in Australia and New Zealand.They focus on increasing HAE awareness and education, diagnosis, improving patient access to therapy and fostering research.
Rare Disorders NZ(external link)
Phone 0800 RARENZ (0800 727369) or email [email protected]. A central starting point for patients and families affected by rare disorders. It helps families, patients and healthcare providers find essential information and support groups.
International HAE Facebook support group(external link)(external link) An umbrella organisation for the world’s Hereditary Angioedema (HAE) patient groups.

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