Hereditary angioedema (HAE) support

Hereditary angioedema (HAE) support

  • Support services and information for people affected by hereditary angioedema (HAE) and their family/whānau.
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HAE Australasia(external link)(external link) 
Support for New Zealanders and Australians affected by hereditary angioedema. Including news, events, medical information, useful links and more. 
NZ Organisation for Rare Diseases(external link)(external link) Phone  0800 RARENZ (0800 727369). A
central starting point for patients and families affected by rare disorders. It helps families, patients and healthcare providers find essential information and support groups.
International HAE Facebook support group(external link)(external link) An umbrella organisation for the world’s Hereditary Angioedema (HAE) patient groups.

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