The lack of information about long COVID and support for those experiencing it can be frustrating. Remember you are not alone – there are people all around the world experiencing long COVID.
Long Covid Support Aotearoa(external link) provides information about support for long COVID and also has a link to the Long COVID Registry Aotearoa New Zealand(external link).
There are online groups established for people with long COVID where you can get support and meet others experiencing this condition:
- Facebook group for Long COVID NZ(external link)
- Facebook group for Long COVID(external link)
- X (Twitter) @LongCovidNZ(external link)
Complex Chronic Illness Support(external link) provides information, support and practical advice for people, families and carers affected by ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome).
ME Support(external link)(external link) is a charity helping New Zealanders with ME/CFS and their whānau or carers.
Health New Zealand | Te Whatu Ora has developed a support programme for people with long COVID, which you can read more about here.(external link)