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iNSider - A kidney tracking tool

An online kidney tracking tool for people with nephrotic syndrome, and their families, to learn more about nephrotic syndrome.

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iNSider - A kidney tracking tool	By University of Michigan
	Features Online tracking tool. Education and information (about nephrotic syndrome). Patient stories.
Clinical review	Read a clinical review below.
Security and privacy	Read more about safety and security when using apps. Brochures: Tips to improve your privacy and security [PDF, 65 KB] Healthify He Puna Waiora, NZ Staying safe online(external link) Netsafe, NZ
Cost	Free
How to access the tool	(external link)

This online tool is an interactive way to track your nephrotic syndrome journey from first symptoms and diagnosis to treatment. Presented as a map, with a bicycle showing you where you are in the journey, you can plot your journey. On the map, tree grove icons have a specific name and clicking on it gives more information relating to that topic such as biopsy, treatment, etc. Guide post icons offer basic information about that stage of the journey such as first symptoms, diagnosis, etc.

The tool also allows you to record questions for your health care team, record your current treatments, invite a health care provider to participate in Insider and view readings suggested by your provider.

For a more information see the NephCure website(external link) or for a more detailed review, see reviews below.

PROS	CONS
✔ Input from renal specialists, patients and parents of patients. ✔ Initial health screening and health literacy questionnaire. ✔ Extensive accurate information about nephrotic syndrome covering symptoms, biopsy, diagnosis, medication, lifestyle, and monitoring. ✔ Compile a question list for your doctor.	✘ No mobile app available (web only), and it is not optimised for mobile browser viewing either. ✘ Security certificate was invalid during testing and so the connection was not secure. ✘ No section for tracking results and measurements. ✘ Current therapies and medication page is very basic. ✘ No videos.

Clinical review

Reviewer: Jeremy Steinberg, GP, RNZCGP
Date of review: April 2019
Platform: Website (online tool)
Comments: This is a web tool for patients with nephrotic syndrome. It has accurate and comprehensive information about the condition. I’m sure patients would find it helpful. It would benefit from a results and measurements tracker. There is no mobile app, nor is it optimised for mobile browser viewing.
Safety concerns: None.
New Zealand relevance: Uses imperial units. Uses US brands (although the generic names are listed as well).

Chronic kidney disease (CKD)
NZ Health App Library
Kidney disease apps
Consumer guide: how to choose a health app
Clinicians guide: how to choose a health app

Beanlands H, Maione M, Poulton C, et al. Learning to live with nephrotic syndrome: experiences of adult patients and parents of children with nephrotic syndrome(external link). Nephrol Dial Transplant. 2017 Jan 1;32(suppl_1):i98-i105.

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