Having kidney failure means that most (85–90 %) of your kidney function is gone. Your kidneys don't work well enough to carry out all their functions. Kidney failure can be sudden or gradual.
Acute kidney failure is often short-lived, but you need treatment until your kidney function returns.
Chronic kidney disease develops over time and is related to a number of risk factors, including diabetes and high blood pressure.
There is no cure for kidney failure, but with treatment you can live a long, active life and continue to do the things you enjoy.
Most people don’t know they have kidney disease until their kidneys fail because symptoms usually show up late in the development of the condition. The symptoms are caused by the build-up of waste products in your blood.
Symptoms of kidney disease can include the following:
loss of appetite
lack of concentration
shortness of breath
nausea (feeling sick) and vomiting (being sick)
changes in the amount and number of times you pee
changes in the appearance of your pee or blood in your pee
puffiness in your legs and ankles
pain in your kidney area
high blood pressure
a metallic taste in your mouth.
Video: Failing Kidneys and Different Treatment Options
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(Doc Mike Evans, US, 2014)
The treatment choices for kidney failure include:
non-dialysis supportive care.
The dialysis treatments or transplanted kidney take over some of the work of your damaged kidneys by removing wastes and extra fluid from your body. This makes many of your symptoms better. Read more about dialysis.
Alan and Barbara give an honest account of their experience of kidney transplant, as recipient and donor.
Video: Stabicraft and Kidney Health NZ Video
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(Kidney Health, NZ, 2015)
Non-dialysis supportive care is the treatment choice for kidney failure when you have decided, in consultation with your healthcare team, that the options of dialysis and transplant are not appropriate for you. Your care continues to be supervised and supported by health professionals. You may have medication and a restricted diet to improve your quality of life. Non-dialysis supportive care will not prolong your life when your kidneys fail completely.
Living with kidney failure means more than just staying alive. It’s a challenge to live life to the fullest despite the limitations of kidney failure, but people do continue to live active lives.
It includes learning how to cope with the many changes that face most people with kidney failure. These can include challenges to your self-image and relationships and changes to your work, holidays, leisure and recreation. You will manage your fitness, exercise and diet differently. You will also need to find out how to manage physical changes to your body, which also affect your sexual function, fertility and menstruation (periods).
Our top tips for managing all these changes are as follows:
Find out as much as possible about kidney failure, your treatment options and what to expect by reading, talking to people and asking questions.
Don't make major changes or commitments quickly, such as leaving your job, moving from your home or changing your finances.
Have regular, gentle exercise.
Set projects and goals important to you and try to achieve these.
Keep up your relationships with your family/whānau and friends. Even though you may not feel your best or have a lot of energy, you will need their support – social and psychological support is as important to your mental health as correct medical treatment is to your physical health
Renal units are usually in large teaching hospitals. They offer specialised help for you to adjust to kidney failure. The team includes your renal physician, nurses, dialysis staff and social workers. Renal units also have access to psychiatrists, psychologists and chaplains.
Most also have their own patient-run organisations and support groups. You can find out about these from your renal unit staff or from Kidney Health NZ.(external link) Kidney Health NZ has regional peer support groups(external link) around the country for people with kidney failure. These are run by trained volunteers who have experienced kidney failure in their own families/whānau, and who offer their time to talk and share stories.
Kidney Health NZ(external link) This national organisation provides information on how your kidneys work, kidney conditions treatment and how to find a support group. Kidney Society(external link) An Auckland-based organisation helping people in theNorthland, Auckland, Waikato, Bay of Plenty, Lakes, Tairawhiti and Hawkes Bay regionsto live well with chronic kidney disease and kidney failure.